In 2015 Casen was diagnosed with a disorder that causes his cells to malfunction and die. As these organ cells die there can be organ damage, and ultimately organ failure.
Casen also has frequent and severe seizures that interfere with his quality of life. Casen's seizures, when uncontrolled, lead to extreme stuttering, constant jerking movements and ataxia which makes him unable to walk or sit, in addition to a variety of other effects.
Though despite these challenges, Casen enjoys LIFE! He is a happy, fun loving, and witty little boy. He loves people and has an infectious smile. He enjoys numbers and puzzles. Seeing life through his eyes has made a big impact on the entire family. For everything Casen endures, he is always happy, and each day is a brand new day in Casen's mind.
His wish to have a backyard playset helps him feel like a kid, enjoying the sunshine, and inviting friends to join him. The playset gives the entire family hope and joy during these difficult times.